Over the past few months I've noticed some changes in my 4 year old son. He's always been sensitive to smells, but now he appears to be sensitive (sometimes) to sounds like if he's trying to have a conversation but my 2 year old is making noise in the background then he'll get very frustrated and angry and sometimes won't be able to finish his thought that he was trying to communicate. Also, at the museum or sometimes while watching TV he'll start blinking a lot over and over for a few minutes. Also, he's been potty trained for over a year, but recently hes been having accidents constantly. Not big ones, just enough to wet through his underwear. He's also been having more outbursts of frustrated crying or anger fits - almost temper tantrums again. He so far appears to be left handed, though he can choose his right at times. About 6 months ago he went through a few months of stuttering as he was trying to commnicate. But that is completely gone now and his speech is normal. His eye contact is great. He communicates well, quite verbal but not above age level that I can tell. He plays with his older and younger sisters great. He is active and funny and noisy himself. He is learning to read. He pretend plays. He pays attention to stories from beginning to end. So it doesn't seem like any disorder I know of. However, his father was diagnosed with Discalculia as a child and his uncle (father's brother) has dislexia. Grandfather on that side has learning disablilities as well. Any thoughts???
I would have him evaluated after talking to my pediatrician about it. Always better to be safe and not sorry!
ive always had problems with noises while i was trying to concentrate on doing something i would get very annoyed and just yell outloud sometimes i was diagnoised with ADHD at age 12 im now 20 and i dont really have trouble with it any more but every once in a while ill still get frustrated with other thins going on around me when i need to do something
Has anything changed with his food lately? Check out Feingold.org and see if that fits at all.
Just for your peace of mind, you could call the pediatrician, let him/her know of the changes and family history & get a recommendation from him/her as to what you should do from here. Good Luck!
I agree with Manda to rule out strep even if there is no sign of illness. My kids will test +, with no sore throat or fever. If the rapid comes back negative, make sure they run a culture. Strep is connected to all the things you mentioned.
When my son had issues arrise, I tried to dismiss it thinking it will go away as fast as they came. Also, I saw a couple things improve on their own and thought it was a sign that nothing was really wrong. Well, not the case.
Just make the appt and rule it out.
Have him evaluated for PANDAS by a doctor who treats PANDAS. It is a little understood illness. He appears to have many of the symptoms. Below is a list. Another source for you is www.pandasnetwork.org.
ARIZONA
Dr. Dinesh Talwar, MDPediatric NeurologyCenter for Neurosciences 2450 E. River RoadTucson, AZ 85718###-###-#### or(800) 687-4504
Dr. Melanie Alarcio
Phoenix Childrens Hospital
###-###-####
ARKANSAS
Richard Livingston, MD
10310 Mayo Drive
Barling, AR 72923
###-###-####
CALIFORNIA
Northern
Dr. Margo Thienemann
900 Welch Road
Suite 207
Palo Alto, CA 94304
###-###-####
____@____.com
Sunjya Keshava Schweig, MD
616 Petaluma Blvd. N
Suite c
Petaluma, CA 94952
###-###-####
Southern
Thomas Lin, MD
Irvine Kids` MD
4634 Barranca Parkway
Irvine, CA 92604
Telephone: ###-###-####
Fax: ###-###-####
Email: ____@____.com
Website: www.irvinekidsmd.com
Gerald Maguire
UC Irvine Medical Center
Bldg 3 - Rt88Irvine, CA 92697
Phone: ###-###-####Fax: ###-###-####Email: ____@____.com
Jonathan Auth, MD
Valencia Pediatric Associates27867 Smyth Drive #100Valencia, CA 91355###-###-#### Office###-###-#### Fax
____@____.com
Center for Cognitive Behavioral Therapy
Barbara Zebb, Ph.D.
27401 Los Altos, Suite 275
Mission Viejo, CA 92691
Phone: ###-###-####
Toll free phone and fax: 877-230-5429
Website: www.drzebb.com
Dr. Harry Pellman
Edinger Medical Group
Fountain Valley/Huntington Beach, CA
###-###-####
Dr. Henry Cramer
11480 Brookshire Avenue
Suite 301
Downey, CA 90241
###-###-####
The following three doctors all worked together and saved a child.
Dr. Christina Friar, child psychiatrist
4851 Enfield Ave.
Encino, CA 91316
###-###-####
Dr. Kenneth Keer, pediatrician
5525 Etiwanda #212
Tarzana, CA 91356
(818) 91356
Dr. Joan Browner, clinical psychologist
17547 Ventura Blvd. Suite 310
Encino, CA 91316
###-###-####
COLORADO
Kytja K.S. Voeller, M.D.
Director
Western Institute for Neurodevelopmental Studies and Interventions (WINSi)
2501 Walnut Street Ste 102
Boulder CO 80302
Thomas J. Smith, MD
Arapahoe Park Medical Plaza Bldg I
Suite 110
Littleton, CO
###-###-####
FLORIDA
Dr. Tanya Murphy
University of South Florida
###-###-####
____@____.com
Dr. Nancy Worthington
5528 NW 43rd StGainesville, FL 32653-3301###-###-####
Aron Tendler MD C.BSM
Diplomat of American Board of Psychiatry and Neurology.
Advanced Mental Health Care
11093 Southern Blvd. Suite 104
Royal Palm Beach Fl 33411
Phone ###-###-####
Fax ###-###-####
WWW.Advancedmentalhealth.com
Michelle Muskus ARNP
Dr. Dan Spearman
Orange Park Pediatrics
###-###-####
Orange Park, FL
Dr. Kathleen Grissett (psychiatrist)
along with therapist Beth Pascoe (LCSW)
###-###-####
Orange Park, FL
GEORGIA
Dr. M. Lisa Huber, MD
Peachtree Psychiatric Professionals
3500 Piedmont Rd NE # 775
Atlanta, GA 30305-1520
###-###-####
Dr. Richard Wagner
Lake Forrest Drive
Atlanta
HAWAII
Dr. Brit Reis
40 Aulike Street Suite 317.
Kailua, Hawaii 96734.
###-###-####
Wright, William T Jr MD Inc
1188 Bishop Street, Honolulu, HI 96813-3313
###-###-####
ILLINOIS
Miroslav Kovacevic, MD GRANT SQUARE MEDICAL CENTER 333 Chestnut, Suite #103 Hinsdale, IL 60521 Telephone: ###-###-#### Fax: ###-###-#### webpediatrics.com
Karen Onel, MD
Center for Advanced Medicine
5758 S. Maryland Avenue
Chicago, IL 60637
http://www.uchicagokidshospital.org/physicians/physician....
Anjum Usman, M.D.
603 East Diehl Road Suite 135Naperville, IL 60563
Phone: ###-###-####
Fax Number: ###-###-####
INDIANA
Dipti Vyas, MD
South Meridian Pediatrics
Greenwood, Indiana
Office # ###-###-####
Dr. Sharon Gilliland
Rainbow Pediatrics
Indianapolis, IN
###-###-####
Dr. Chris Belcher, Pediatric Infectious Disease
Infectious Disease of Indiana
Indianapolis, IN
###-###-####
Debroh Sokol
Pediatric Neurology
(told one parent she’s not a PANDAS specialist)
Riley Outpatient Center
702 Barnhill Drive
Indianapolis, IN 46202
###-###-####
IOWA
Dr. Stephen Elliott
Diagnostic Center
Blank Children’s Hospital
Des Moines, IA
###-###-####
LOUISIANA
Allison Conravey, MD (pediatric neurologist)
Tulane Medical Center
1415 Tulane Avenue
New Orleans, LA 70112
Jane El Dahr, MD (pediatrician)
1430 Tulane Avenue
Department of Pediatrics
Tulane Medical Center
New Orleans, LA 70112
###-###-####
fax ###-###-####
MAINE
Maura B. Price, M.D. (Pediatrics)
13 Industrial Park Road
Suite 2
Saco, Maine 04072
T: ###-###-####
F: ###-###-####
Keeyln Wu, DO
98 Clearwater Drive
Falmouth, ME 04105
###-###-####
www.ohmaine.org
MARYLAND
Dr. M. Elizabeth Lattimer, MD
6420 Rockledge Drive
Suite 4920
Bethesda, MD 20817
###-###-####
Dr. Jeffries Bucci, MD
Baltimore, MD
###-###-####
MASSACHUSETTS
Dr. Daniel Geller
Director, Pediatric OCD Program
Massachusetts General Hospital
Child and Adolescent Psychiatry, Yawkey 6A
55 Fruit Street
Boston, Massachusetts 02114
###-###-#### x###-###-####
###-###-####
Dr. Cathy D. Chong ENT
South Weymouth, Massachusetts
###-###-####
Peggy Chapman (Psychiatric Nurse)
62 Derby Street #11
Hingham, MA 02043
###-###-####
MINNESOTA
Constance McLeod
2915 S. Wayzata Boulevard
Minneapolis, MN 55405
###-###-####
MISSISSIPPI
Cynthia Dean CFNP
Trace Medical Clinic
530 Veterans Memorial Drive
Kosciusko, MS 39090
____@____.com
###-###-#### cell
###-###-#### clinico
###-###-#### home
Colette C. Parker, MD **
Pediatric Neurology
The University of Mississippi Medical Center 2500 North State Street Jackson, MS 39216-4505 ###-###-####
**conflicting reports on whether she believes in PANDAS
Catherine P. Phillippi, M.D.
Children's Medical Group 1867 Crane Ridge Drive, Suite 101B
Jackson, MS 39216 Phone: ###-###-#### ax: ###-###-#### mail: ____@____.com
Dr. Alicia Ewing
Dr. Zhear Godi
Amory Pediatric Clinic
1107 Earl Frye Blvd.
Suite 5
Amory, MS 38821
###-###-####
MISSOURI
Bernardo Flasterstein, MD (neurologist)
2115 S Fremont Ave
Springfield, MO 65804-2239
###-###-####
St. John's Pediatrics
2115 S. Fremont Ave., Suite 2900
Springfield, MO 65804
###-###-####
Dr. Barbara Trites, M.D., pediatrician
Lee's Summit Physicians Group
1425 NW Blue Pkwy
Lees Summit, MO64086
###-###-####
NEVADA
Stewart Tatem MD
350 West 6th Street
Reno, NV 89503
###-###-####
NEW JERSEY
Dr. Catherine Nicolaides, MD
Elmwood Business Park
733 Route 70 East
Building #2, Suite 201
Marlton, NJ 08053
###-###-####
Dr. Rosario Trifiletti MD PhD
246 N. Franklin Tpke
Suite 5
Ramsey, NJ 07446
###-###-####
General website: www.neurokidsr.us
Dr. Lara Morse (pediatric neurologist), MD
Pediatric Neurologist
Program Director
Pediatric Developmental Center
Saint Barnabas Medical Center
Livingston, NJ
Phone: ###-###-#### (ask for Carla)
Fax: ###-###-####
Harold Arlen MD
2110 Maple Avenue
South Plainfield, NJ, 07080
###-###-####
NEW YORK
Dr. David S. Breindel, MD
234 Elk AvenueNew Rochelle, NY 10804###-###-####
Elmwood Pediatric Group
919 Westfall Road
Building A, Suite 105
Rochester, NY 14618
###-###-####
www.elmwoodpediatrics.com
Laurence R. Saul, M.D.7 E 68th St Ste BNew York, NY 10065
###-###-####
Karen Levine
77 Mercer Street
NYC
###-###-####
Dr. Max April
1305 York Ave
New York Otolaryngology Associates
Floor 5
NY, NY 10021
173 Froehlich Farm BlvdNew York Otolaryngology AssociatesWoodbury, NY 11797
Eric Hollander, MD
Director of the Compulsive, Impulsive, and Anxiety Disorders Program
Mount Sinai Medical Center
300 Central Park WSuite 1 CNew York, NY 10024
____@____.com
###-###-####
Academic Affiliation:
Montefiore Medical Center University Hospital
Albert Einstein College of Medicine
Dr. Keri Chernuchin
485 Underhill Blvd.
Syosset NY
###-###-####
Stefanie Weinraub Weiss (consulting under the doctor’s direction)
____@____.com
###-###-####
A. Kelly, RN, CFNP (very good diagnostician)
Hudson Valley Primary Care
1323 Route 9, Suite 204
Wappingers Falls, NY 12590
T: ###-###-####
F: ###-###-####
Laurie Moran-Marsh, NP-P (Board Certified)
Northern Psychiatric Services, P.C.
11 Marshall Rd., Suite 2L
Wappingers Falls, NY 12590
T: ###-###-####
F: ###-###-####
Dr. Arthur Buonagpina
2627 Hylan Boulevard
Staten Island, NY 10306
###-###-####
Alan Jacobs MD (treats young adults)
120 East 56th Street
Suite 1040
New York, NY 10022
and
359 East Main Street
Suite 3B
Mount Kisco, NY 10549
http://www.neuroendocrinology.org/
Dr. David Halpert (Pediatric Neurologist)
3318 South Main Street
Horseheads, NY 14845-3405
###-###-####
Dr. Gregory Malanoski (Infectious Disease)
602 Ivy Street
Elmira,
NY 14905-1646
###-###-####
Michael Compain, M.D.
Kenneth Bock, M.D.
Rhinebeck Health Center
108 Montgomery Street
Rhinebeck, NY 12572-1106
Fred Pescatore, MD, MPH, CCN
369 Lexington Avenue - 19th Floor
New York, New York 10017
###-###-####
www.drpescatore.com
Dr. Kenneth Bock
108 Montgomery Street
Rhinebeck, NY 12572
###-###-####
F ###-###-####
www.rhinebeckhealth.com
Dr. Stanley Weindorf
Woodbury Pediatrics
202 Terminal Drive
Plainview, NY
###-###-####
NORTH CAROLINA
Dr. James Biddle, MD
Asheville Integrative Medicine
832 Hendersonville Road
Asheville, NC 28803
###-###-####
www.docbiddle.com
Dr. Cormac O'Donovan
Wake Forest Baptist Medical Center
Winston-Salem, NC
###-###-####
http://www.wfubmc.edu/Faculty/O-Donovan-Cormac-A.htm
OHIO
Dr. Nevada Reed, MD (neurologist)
8054 Darrow RoadBuilding D, Suite 5 & 6Twinsburg, OH 44087phone: ###-###-####fax: ###-###-####
http://www.kidslinkohio.com/family/reed.shtml
OKLAHOMA
Madeleine W. Cunningham, Ph.D.
George Lynn Cross Research Professor
Microbiology and Immunology
Director, Immunology Training Program
University of Oklahoma Health Sciences Center
Biomedical Research Center Room 217
975 NE 10th Street
Oklahoma City, OK 73104
Tel ###-###-####
Lab ###-###-#### X47455
FAX ###-###-####
email: ____@____.com
OREGON
Dr. Sara Cannon
The Children's Clinic
Tualatin, OR
http://www.childrens-clinic.com/tualatin.html#cannon
Margaret MacDonald EDD CPNP PMHN
###-###-####
Jenne Henderson
The Children’s Program
7707 SW Capitol Hwy
Portland, OR 97219
###-###-####
http://childrensprogram.qwestoffice.net/staff.html#jenne
PENNSYLVANIA
Dr. Josephine Elia
Children’s Hospital of Philadelphia
3440 Market Street
Philadelphia, PA
###-###-####
Tamar Chansky, Ph.D.
Founder and Director,
Children's Center for OCD and Anxiety
3138 Butler Pike, Suite 200
Plymouth Meeting, PA 19462
###-###-####
____@____.com
www.freeingyourchild.com
www.worrywisekids.org
@freeingyourmind
St. Christopher's Hospital for Children
Dr. Agustin Legido, MD, Ph.D., MBA
Chief, Section of Child Neurology
Professor of Pediatrics and Neurology
Department of Pediatrics
Erie Avenue & Front Street
3rd Floor ACP, Suite 3314
Philadelphia, PA 19134-1095
Phone: 215-427-8372/5470
Fax: ###-###-####
RHODE ISLAND
Dr. Keissling
Memorial Hospital Behavioral Health
111 Brewster Street
Pawtucket, RI 02860
###-###-####
TENNESSEE
Elisa I. Benaim, M.D.
Pediatric and Adolescent Medicine
Pediatric East, Inc.
8025 Stage Hills Blvd.
Bartlett, TN 38133
###-###-####
Dean A. Klug, M.D. F.A.C.S.
Mid-South Ear, Nose and Throat, P.C.
6286 Briarcrest Ave., Ste 300
Memphis, TN 38120
###-###-####
1-800-742-1335
TEXAS
Dr. Charles Goebel (diagnoses but doesn’t treat)
Pediatric Specialists of Plano
3405 Midway Road Suite 650
Plano, TX 75093
###-###-####
http://www.facebook.com/l/582dc;www.psopkids.com
Roger Skiles MD
http://www.stonebriarent.com/
Stonebriar Ear, Nose & Throat
5575 Warren Parkway
Suite 104
Frisco, Texas 75034
(469) 633 - 9595
Fax: (469) 633 - 9460
Debra Phelan, Ph.D.
Clinical Psychologist
12820 Hillcrest Road, Suite C218
Dallas, Texas 75230
###-###-####
Dr. David Owen, M.D.
Pediatric Neurologist
Medical City Dallas
7777 Forest Lane, Suite A307
Dallas, TX 75230-2507
###-###-####
Dr. Seshagiri Rao, MD
Allergy, Asthma and Immune Disorders
3016 Communication Parkway, Suite 100
Plano, TX 75093-8906
###-###-####
NeuroSensory Center of America - Trophy Club Dallas / Fort Worth MetroKendal L. Stewart, M.D. Wallace E. Taylor, Jr., M.D. 2800 E. Hwy 114Suite 300Trophy Club, TX 76262P: ###-###-####F: ###-###-####
http://www.neurosensorycenters.com/
VERMONT
Jeffery Wulfman
Brandon, Vermont
VIRGINIA
Dr.Julie Fortner
Richmond Pediatric Center
John Rolfe Commons
2304 John Rolfe Parkway
Henrico, VA 23233
###-###-####
Dr. David Band
20905 Professional Plz # 220
Ashburn, VA 20147-3409
###-###-####
Dr.'s Overton, Wiley, Kirchmier, Terry and Rowe, PC
10410 Ridgefield Parkway
Richmond, Va 23233
###-###-####
Dr. Rebecca Fox
Loudoun Pediatric Associates
Loudoun County, VA
###-###-####
Gabrielle Anderson, LMFT (Family Therapist & Play Therapist)Lansdowne Family Counseling Practice, llc19415 Deerfield, Ave #307Lansdowne, VA 20176Tel: ###-###-####www.LansdowneFamilyCounseling.com
WASHINGTON
Dr Donald Shifrin
Pediatrics Associates Inc, PS
2700 Northup Way
Bellevue, WA 98004
###-###-####
Dr Robert Reichler, MD Psychiatrist
Pacific Institute of Mental Health
21827 76th Ave W, Edmonds, WA 98026
###-###-####
Dr Steve Katz Psychologist
11715 SE 5th St
Suite 204
Bellevue, WA 98005
###-###-####
Dr. Cynthia Keller
Redmond Pediatrics
Redmond, WA
(425) 881-KIDS
Dr. Denise Jervis
Family counselor
Kirkland, WA ###-###-####
Dr. Geoffrey Weigand
Child Psychologist
Childrens Hospital in Seattle
###-###-####
Dr. Deborah Mcgrew
9635 17th Avenue South West
Seattle, WA, 98106
###-###-####
Dr. Raymond T Ferri
Seattle Children's Hospital
###-###-####
WISCONSIN
Dan Rossignol, MD
Fitchburg, WI
###-###-####
INTERNATIONAL
AUSTRALIA
Steven Mouratidis
Allergy Elimination Clinic
3 Denmark Street
Kew
Victoria
3101
Australia
ph: 03-9855-2249
fax: 03-9855-0090
Email: ____@____.com.auWebsite: www.AllergyElimination.com.au
Behavioural Neurotherapy Clinic
2/314 Manningham RdDoncaster Victoria 3108
Tel: (03) 9848 9100Fax: (03) 9848 9300
http://www.adhd.com.au/PANDAS.htm
Richard Stuckey, M.D.
Border Medical Clinic
15/122 Griffith St.
Coolangatta, QLD
4225
Australia
ph: 61 7 55 364396
fax: 61 7 55 364045
CANADA
Dr. Rob Nicolson, Chair & DDD UGE Director ____@____.com
Phone: ###-###-####
Address: Children's Hospital of Western Ontario, Dept. of Psychiatry, Professional Block, Room 201, 800 Commissioner's Road East, London, Ontario N6C 2V5
Dr. Carrol
But it may be a long shot –###-###-####
Dr. Brill
South Lake Regional Hospital
596 Davis DriveNewmarket, ON L3Y 2P9, Canada###-###-####
Dr. Arnold
The Hospital for Sick Children555 University AvenueToronto, OntarioCanadaM5G 1X8
DENMARK
Finn E. Somnier Neurologist
Statens Seruminstitut
____@____.com
ITALY
Dr. Carmela Caputo
S. Giuseppe Hospital, Department of Pediatrics
via Boccaccio
50053 Empoli (FI)
phone: +39 347/6966569
or: +39 571/706452 or +39 571/706455
e-mail ____@____.com
sito: www.pandasitalia.it
PANDAS Italia Associazione di volontariato <____@____.com>
about a week ago · Report.Catherine Flood Fleck
Please add to your Dr list for Arizona : Dr Robert Hellmers
Arizona Allergy Associates
705 S Dobson Rd
Chandler, AZ 85224
ph - ###-###-####.
He also has 3 other offices, currently treating about 8 - 9 PANDAS kids, thanks
on Thursday · Report.
Reply
The below list is incorrect, in that Dr. Cathy Chong, ENT, does NOT treat PANDAS in Massachusetts. No ENT doctors medically treat PANDAS. Please refer to the PANDAS Foundation website for an updated and correct list of doctors by state: www.internationalpandasfoundation.org
How is he doing now? I just saw this conversation and may be able to add to it but want to know how he is doing.
The blinking thing makes me think he may need glasses, we had somethign similar to that.
The rest could be a change in routine, and besides someone making noise while you are talking is distracting:)
my first thought is a major upheaval in his routine. have you moved recently? switched schools or daycare providers? had a new baby? any of these can trigger all of the symptoms you describe - my son went through similar when we moved and he had to start at a new school. also some of the anger issues may just have to do with the age (compounded by any changes mentioned above) - my son has been going through a phase lately, i have a feeling it's a growth spurt, and his tantrums are CATASTROPHIC. i have never seen him, at 2, or at 3, throw tantrums like these. we're working through it and have found some tricks to help avoid them altogether, but i have heard tons of moms on here complaining of the same in their 4 year olds. could be a combination of a couple things. with my son, i started feeding him an additional snack, first thing in the morning, because he eats breakfast at school and it's too long to wait - hence causing the severe meltdowns in the mornings. good luck. hope you find something that works.
I may be off, but look up absence seizires. My 6.5 y/o son was diagnosed a year ago Thanksgiving.
I am literally running out the door, but wanted to respond ASAP. Go - run!- and get a strep test done. You want a rapid and a 72 hour culture. BOTH!
Go to ACN Forums and click on the PANDAS discussion forum and ask this same question there. It sounds like PANDAS to me. Here is a site with PANDAS symptoms: www.webpediatrics.com
More later or message me- my daughter has this and started same way exactly.
M.
It could be sensory integration issues, which become more intrusive when the sufferer is trying to focus, learn a new skill, is tired or hungry or sick, or hasn't had enough of (or has had too much of) some kind of sensory input.
There's a very comprehensive set of checklists at this site to help identify kids who are hypersensitive, hyposensitive, or a combination, plus loads of information about how parents deal with children's sensory needs: http://www.mamapedia.com/questions/913752821298495489?new...
Hi mom. Your story sounds similiar to my son Michael. Michael was diagnosed with Hyper-sensory issues when he was five. He just turned seven and is doing well. Sensory therapy worked wonders for him. It helped him with emotional regulation and desensitizing his world made a big difference. I write a lot about these things on my blog. ____@____.com
Does your school district have an early childhood evaluation coming up? Most do and he can be tested for his age level skill. Also get his pediatrician involved NOW. If they won't listen it is time for a new doctor. Momma's know when there is something up. Ask what resources, doctors, evaluators are needed to assess him to make sure you are giving him everything he needs from an early age. Many issues present themselves uniquely. Could be PANDAS, mild spectrum autism, Celiac, Diabetes, Thyroid problems. So now is the time to make sure it is not something to address...urgently.
