2 Year Old with down Won't Eat After Surgery

Updated on May 27, 2008
B.C. asks from Chicago, IL
7 answers

Hello,

I have a two year old son who is living with Down syndrome. He had his tonsils and adenoids removed and liquid from his ears removed a week ago today. While I understand that recovery can be slow, he is showing an unusual aversion to all foods---soft ones, tasty ones, even fruit, pudding, noodles, ice cream, mash patatoes, etc. I am worried because he is small to begin with (only 20lbs) and loosing weight rapidly. He is refusing to drink milk and will only drink juice. He will drink juice and water and will eat some yogurt, grapes and strawberries, a little bit of pancake so there is some intake, but it sporadic at best and it's frustatingly easy for him to avoid food altogether. Is this normal after surgery and if so how long before I should seek medical help?

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So What Happened?

I want to thank everyone who gave me some hope and encouragement. Amazingly, today, eight days after surgery he truly turned a corner---and his hunger came back with an incredible vengence! This morning he ate a pancake with vanilla ice cream. He drank a Mexican drink called "horchata" (rice water with cinamon). We went to a birthday party this afternonn and there he ate a hot dog, cake, ice cream and a cookie with lots and lots of fruit punch.

I had spoken to his pediatrician who said much the same that most of you had. The first 7 days are the worst. She thought he would turn the corner early next week and advised that ice cream was better than milk, clear juices with pedialite, and anything he can or will eat.

So here we are, in a much better place than just 36 hours ago! Thanks for everything!

More Answers

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J.P.

answers from Chicago on

I know it is different because my husband was so much older, but recovery from having your adenoids removed is very painful. He may just still be having pain and is afraid to eat. It sounds like you haven't tried smoothies, maybe add his favorite juice and see it that works. I would of course talk to your doctor since he is so tiny to begin with. But again it is a painful surgery and I bet it just hurts to eat anything. Poor guy!! Good luck and hopefully he will be fully recovered soon.

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J.K.

answers from Chicago on

I have a 5 year old daughter with disabilities and she has undergone several surgeries. She also had many times when she would not eat anything. At one point we took her in to Children's and found out she was malnourished. She was about 2 at the time and her weight had dropped under 20 lbs. I felt terrible that I had let it go that long! We had to put in an NG-tube (through her nose to her stomach) and give her feeds of Pediasure. The NG became a real pain and we had a G-tube surgically inserted in her stomach. Hopefully, the eating will not remain a long time issue for your son, but for the time being I recommend taking him in sooner than later. Perhaps a few days with the NG and some supplemental feedings would help him. I guess the problem would be that his throat is already really sore and the tube will not help that! I have no experience with adenoid or tonsils, but my neighbors son just had his adenoids removed and after 5 days he is not eating much either.

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J.R.

answers from Chicago on

Have you tried pediasure? I would give that a shot.

With the consideration of Down's aside, I think now is a good time to seek medical help. Definitely put a call in to the doc today... i always find that everything gets worse on the weekends when nobody's in the office, ya know? murphy's law i guess.

I think given his already low weight, I wouldn't want to let him go long without returning to his usual pattern. My fat little guy can stand to lose a few pounds, but at 17 months he's got 15 pounds on your boy. a week... I dunno. On top of that he's in recovery mode... he really does need something to keep his strength up... give the Pediasure a try, and call your pediatrician to see if you should be concerned or if they think it's ok. Its good he's eating 'something' and not refusing liquids...

Won't hurt to call the doc :)

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L.K.

answers from Chicago on

Most people don't eat much during the recovery .As long as he is drinking enough clear fluids like water , juice, pedialite,to keep his throat moist and eating whatever he can he will be alright. As an adult at ten days you "turn the corner" and get considerably better each day. Within a few days you are almost back to normal because the scabbing is gone. The throat is still a little raw so continue soft foods but his appetite will return.as a child the recovery time can be less so you are almost there:)It does seem to stay the same until the scabbing goes away and is very frustrating so try to keep him entertained and occupied.Try to avoid the creamy foods though like milk pudding etc at first because they aren't very enjoyable after this surgery. Popsicles before mash potatoes may work because his throat will be a little numb.Hang in there it's almost over!

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S.

answers from Chicago on

I would contact your doctor- my doctor gave my son 3 separate doses of a steroid so he would eat and to cure the tonsils

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R.C.

answers from Chicago on

B.,
Being a mom of a 4 year old with DS, I went through the same thing. However, they took his adnoids & tonsils out at different times because my son was small as well. Ryan went about 2 weeks with being picky in his eating. Whatever he will eat let him eat it. Watch for signs of dehydration, not urinating,constipation, lethargic & for signs of bleeding.

Have you tried broth or chicken noodle soup?

Ryan is 4 & still only weighs 28 pounds! While his typical twin tops out out 42!
hang in there!

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L.F.

answers from Chicago on

I have a 10 year old with DS and she had her tonsils and adenoids removed a long time ago too. She would not eat anything even jello for about 4 or 5 days. It took about 10-14 days until she was eating normally. She is average weight, about 56#. Hang in there and let him eat whatever he will eat and as much of that food as he wants. Eventually he should start eating more and get back to his normal eating pattern.

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